So I received a transfusion Monday. Now I'm a medically assisted vampire. Great!
My platelets were down to 15k, it had to be done. Luckily, I bounced back enough by Thursday to not need a second transfusion. 44k, I just have 60k more to go before I can do the next round of chemo, no big deal.
The first thing my dad did when I texted him that I was getting a transfusion he called and nagged me that even though I'm clumsy I must absolutely not fall because that will be very dangerous for me. He said at least three times: no heels, you like those heels. 😂 In my head, I'm like, thanks? Nothing says I love you like accusing me of lacking the ability to stand on my own two feet. He's not wrong though... I broke my ankle walking out my front door a few months ago.
Having low platelets means that I am having trouble with coagulation. Hence, I have bruises everywhere. They are all up and down my legs from the cats walking across me at night. The other night Demi kneaded my stomach and you would think I have had a hammer beatdown on my ribs. They are all over my arms because of Torin's general use of my body as a punching bag, bounce house, vending machine, uber, and recliner.
I wrote before that I emotionally struggled to be sick but not looking sick. Not right now. I am still relatively energetic and friendly out in public, but if I'm wearing short sleeves it's easy to tell something is wrong.
I saw a tiktok video the other day where a "seasoned" woman said: "my mind thinks I'm old and my body thinks I'm an idiot". I laughed and thought: yeah girl, your body and my body need to get together for coffee and gripe about, everything.
Despite its plot to destroy me, my body is reluctantly getting better. This morning I saw evidence of my bruises finally beginning to fade, one less thing to worry about.
I'm pretty sure everyone knows but in case you don't, I have a crafting addiction. My Cricut has made me a monster! May is Brain Cancer Awareness Month and I put together a wreath in the last few days. (Imagine Stewart's "look what I can do!")
When I was looking at ways to make a brain cancer-specific sort of ribbon I ran into a sign: "Not all Brain Cancer is Pink". I didn't want to make it a sign for my wreath because I think it's a little passive-aggressive but it does bring up a valid sentiment. It's easy to feel unnoticed because almost nobody knows about gray ribbons. I specifically don't feel unnoticed because I have TONS of support, but I do think brain cancer isn't discussed much when it comes to fighting for a cure. It makes sense though, it impacts fewer people and we have far fewer survivors around to talk about it. I do think about my friends at my brain tumor support group though, some could use a little more hope.
So, do me a favor, if you come across a gray ribbon, wear it. =) I can also make you one of my vinyl brain ribbons as a decal if you have something you want to make or put it on. As soon as I showed it to my brother he requested a t-shirt. So I can do iron-on vinyl too if anyone wants one since I'm making his. I'm going to attempt to make a magnet for my car. See, I'm a craft monster!
Also, my baby is almost one and I HATE it. A nice little post-bath mohawk going on there!
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