Skip to main content

Round 2!

 I'm starting round 2 on Monday.

My bloodwork this last week showed that I recovered well from round one. Whoop!

The first time they put me at 75% of the therapeutic dose as a safety measure. Yes, I felt like crap, but for this time, I asked for more. "I can handle it, I want the max, let's fuck Earl up!"

I'm going to beat the crap out of both of us so I can win. I don't want to waste time being nice.

Lindsay popped up on my memories on facebook today. She was one of my best friends, since age 9. My aunt thought I needed a playmate when I would stay across the state at my grandparent's house in the summer, so she introduced me to her friend's daughter, and we were friends from the moment we met. A year after I was declared as in remission, Lindsay called and said she was sick. Two months later, she was gone. Lindsay was the light of any room she walked into. Kind, funny, loyal, and inspiring. She saw and brought out the best in others. She lived with love.

She is my biggest source of survivor's guilt. 

All survivors have that twinge in the back of their minds. Every time I hear a story of a brain cancer patient who passed I wonder what the world would look like if we traded places. Linds had a HUGE future. At that point in my life, if you would have given me the option to trade, I wouldn't have blinked. 

But I wasn't given the option and so I did the only thing I could do to honor her, live. I tried to build a life she would be happy to see me have. Sometimes, when I look at my son, I feel her smile. She had THE BEST smile. I don't have strong opinions of what the afterlife is or how it works, but I do talk to her. 

In that first week when we were waiting to hear how serious my tumor is now, I spoke to her often. We all have coping mechanisms, apparently one of mine is talking to dead people. lol... Don't worry, I don't hear them talk back, yet.

But I do know what she would say: "Give 'em hell!" 

I'm guessing that my story is bringing up other stories and helping you grieve your own loved ones. Me too.

The less thing to worry about is that I'm feeling strong and about to land the heaviest blows I've ever thrown at Earl. I'm just getting started. My fortitude is for Torin and Aaron, you all, my fellow and fallen brain cancer warriors, and Linds.

She has a foundation in case you want to know more about her and increase your awareness of sarcoma. 

http://www.ftlsarcomafund.org/

Don't worry, I wouldn't hold out on a Torin pic. He is getting so big!

















Comments

Popular posts from this blog

Butterfly Day

( The title of the last blog post indicated that I needed a simple name for this day. I can't remember if someone suggested it outright, or whether they said something to make me think of it, but either way, the name I now use is Butterfly Day. Torin painted on a picture of a butterfly at school on the very day his mother passed, and his teachers had just so happened to put his name and date on it.) Another year has passed, and it simultaneously seems like a short time and a long time. I do still write letters to Danielle, but just haven't been posting them here. The one I just wrote took a lot out of me, in fact, so this probably won't be a long update. When I took over the blog, one of the things that felt important in continuing this legacy was to document not only the grief process, but the process of healing.  Overall, on a day-by-day basis, I'd say I have come to terms with my loss. By that, I mean that, except for days like today, and on a few rare other occasion...

Letter In A Bottle

Today, on what would be her 38th birthday, I wrote a letter to Danielle. It's the first such letter I've written, and it was cathartic. I wasn't sure whether I would just paste it here, or just paste parts of it here, or write something else entirely, but I've decided to share it in its unabridged entirety. It re-treads some ground that I've already covered in this blog, but this was written to Danielle; those were not. Most typos are inside jokes or turns of phrase. Happy birthday, Danielle. I love you. First, foremost, and always. My love for you is unconditional, unquestionable, and unquantifiable. I miss you. Lort, how I miss you. I miss your smile, your wit, your kindness, your grace, your strength, your care, your laugh, your sillies . I miss my partner and companion. I miss my babymama. I miss my wiff. I cry every day. I have a little ritual - my specific time for grieving you. When I put Torin to bed, I play him the last video you made. I can watch the video...

I need a name for this day that neither cutesy nor grim

Danielle Louise Joanette-Kluck passed from this life one year ago today. As has become a cathartic personal tradition on milestone dates, I've written her a letter, which I share with you below. Danielle, my love, It’s been one year since I held your hand and felt you squeeze mine for the last time. Though only the first of many, it’s still surreal to think about. I went back and read the blogs I wrote and the other letters I’ve written to you (some of which I’ve also published as blogs), and it very easily brought back feelings and memories of the past year. There are a number of moments that I remember like they were yesterday, and that I’ll likely never forget. It seems like a good time to take stock. How are Torin and I doing, one year out? There are a few different axes upon which we can measure, but I think I’m going to upgrade the overall answer from my frequent reply of “okay most days” to “pretty good on average” . I’ve hit a stride in my single-parenthood and feel more c...