So, an eventful week! A whole day with Jeremy, Jess, and Michael, went and saw "bridesmaids" (meh), lots of visiting, and Sunday I went and saw a film due to personal invite from an old family friend.
We went as saw Burzynski The Movie. It is about another form of cancer treatment. The movie itself is more about how the government is trying to steal his discovery. Some people think it's because they want to make money off his ideas, I think it's because they want to bury it forever because the US makes trillions of dollars on chemo and radiation. I talked with someone treated by Burzynski yesterday, she is someone I grew up with for a long time, she participated in his stage 2 FDA clinical trials. She and I had the same piano teacher, went to the same elementary school, have the EXACT SAME VERY RARE BRAIN TUMOR. We are the same age, grew up 25 miles from each other once I moved. Kendra Gilbert, in september 2006 was diagnosed with a non-operable stage 3 anaplastic astrocytoma, after no success with chemo and radiation, went to Texas for Burzynski treatment. She is now living happily with a completely inactive tumor. As close to remission as we can hope!
Now it gets more creepy...
Another girl I grew up with, she and I are a few months apart even though she graduated a year under me. We also had the exact same piano teacher and have known each other since we were 3 or 4. I found out at the filming that she also has, the EXACT SAME VERY RARE BRAIN TUMOR. I don't know the details yet because she facebooked me when she found out about me, but didn't tell me about her. I had no clue until yesterday and now I'm mad that she didn't tell me. (OH K----, guess who's stalkin you now until we talk?!) We lived 10 miles from each other. She had an operable tumor completely removed and later diagnosed as a stage 3 anaplastic astrocytoma.
This is so messed up. What is in the water over here?
Luckily, there is a treatment option that does not have the same side effects that my current treatment has. I encourage you to take a look and learn more about the medical side about this. Even if the Burzynski treatment doesn't work (just like chemo and radiation only delays the inevitable) the side affects do not make you vomit, burn your scalp, constipate you, destroy your liver, etc. Pending my scans in July, I will probably try this if I'm not doing as well with Temodar, considering one of the side affects of my Temodar is Leukemia.
YES, that's correct folks, one of the side affects to my cancer medicine is CANCER. yummy.
Now, don't worry, I am not jumping on an "alternative medicine" bandwagon, it has been painted like that in the media in efforts to destroy having options because it would cost the FDA and pharmacutical companies billions of dollars. FDA clinical trials are showing success with this, and you better believe that my Mom, Dad, and Sherry went with me yesterday, and that now I know it will become a family research project as we keep this as a back burner option. I've had all the radiation a human body can withstand, this is a potential Plan B
Check it out, especially if you have loved ones that could use some additional options!
The Burzynski Movie
The Burzynski Clinic
Also, 500,000 people have seen the movie, and the Gilberts are advocating just like many of Burzynski's other patients to get more people exposed so more people can have this option for treatment. The Burzynski movie may be able to be seen at the Traverse City Film Festival. Since there is some sort of crazy brain tumor creepy alien movie thing going on in this region, I'd like more people to see this too. The people's choice film for the festival hasn't been decided yet, so we can still vote. Here is the link:
Vote for people in Traverse to see the movie!
Ok, so that's all I got for now. Wednesday may be a kayaking or fishing day with my Dad and Brett, I'm looking forward to that. Thursday starts Manistee's Forest Festival I'm so looking forward to the carnival, art fair, fish boil, hikes, tours, the pow wow with the local tribe, even the beer tent (I may have a sip and be an UBER cheap date!)
The fun part about summer in Manistee is starting in a couple days, AND, I might not die because of a treatment that also doesn't make me feel like crap! WHOOP! Less things to worry about!
We went as saw Burzynski The Movie. It is about another form of cancer treatment. The movie itself is more about how the government is trying to steal his discovery. Some people think it's because they want to make money off his ideas, I think it's because they want to bury it forever because the US makes trillions of dollars on chemo and radiation. I talked with someone treated by Burzynski yesterday, she is someone I grew up with for a long time, she participated in his stage 2 FDA clinical trials. She and I had the same piano teacher, went to the same elementary school, have the EXACT SAME VERY RARE BRAIN TUMOR. We are the same age, grew up 25 miles from each other once I moved. Kendra Gilbert, in september 2006 was diagnosed with a non-operable stage 3 anaplastic astrocytoma, after no success with chemo and radiation, went to Texas for Burzynski treatment. She is now living happily with a completely inactive tumor. As close to remission as we can hope!
Now it gets more creepy...
Another girl I grew up with, she and I are a few months apart even though she graduated a year under me. We also had the exact same piano teacher and have known each other since we were 3 or 4. I found out at the filming that she also has, the EXACT SAME VERY RARE BRAIN TUMOR. I don't know the details yet because she facebooked me when she found out about me, but didn't tell me about her. I had no clue until yesterday and now I'm mad that she didn't tell me. (OH K----, guess who's stalkin you now until we talk?!) We lived 10 miles from each other. She had an operable tumor completely removed and later diagnosed as a stage 3 anaplastic astrocytoma.
This is so messed up. What is in the water over here?
Luckily, there is a treatment option that does not have the same side effects that my current treatment has. I encourage you to take a look and learn more about the medical side about this. Even if the Burzynski treatment doesn't work (just like chemo and radiation only delays the inevitable) the side affects do not make you vomit, burn your scalp, constipate you, destroy your liver, etc. Pending my scans in July, I will probably try this if I'm not doing as well with Temodar, considering one of the side affects of my Temodar is Leukemia.
YES, that's correct folks, one of the side affects to my cancer medicine is CANCER. yummy.
Now, don't worry, I am not jumping on an "alternative medicine" bandwagon, it has been painted like that in the media in efforts to destroy having options because it would cost the FDA and pharmacutical companies billions of dollars. FDA clinical trials are showing success with this, and you better believe that my Mom, Dad, and Sherry went with me yesterday, and that now I know it will become a family research project as we keep this as a back burner option. I've had all the radiation a human body can withstand, this is a potential Plan B
Check it out, especially if you have loved ones that could use some additional options!
The Burzynski Movie
The Burzynski Clinic
Also, 500,000 people have seen the movie, and the Gilberts are advocating just like many of Burzynski's other patients to get more people exposed so more people can have this option for treatment. The Burzynski movie may be able to be seen at the Traverse City Film Festival. Since there is some sort of crazy brain tumor creepy alien movie thing going on in this region, I'd like more people to see this too. The people's choice film for the festival hasn't been decided yet, so we can still vote. Here is the link:
Vote for people in Traverse to see the movie!
Ok, so that's all I got for now. Wednesday may be a kayaking or fishing day with my Dad and Brett, I'm looking forward to that. Thursday starts Manistee's Forest Festival I'm so looking forward to the carnival, art fair, fish boil, hikes, tours, the pow wow with the local tribe, even the beer tent (I may have a sip and be an UBER cheap date!)
The fun part about summer in Manistee is starting in a couple days, AND, I might not die because of a treatment that also doesn't make me feel like crap! WHOOP! Less things to worry about!
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