One Less Thing To Worry About

Danielle can't type anymore, so this is her husband, Aaron. I'll be taking over blogging duties. It's been quite a month. In her last post, Danielle spoke about how we went to Florida, and I cannot stress enough how amazingly, mind-bogglingly lucky we were re: the timing of that trip. It was a much-needed respite, and it's easy to imagine how things would have been very, very different if her symptoms had started just a few days earlier. Anyways, let's talk about what has been going on. Week over week, Danielle has been getting weaker, particularly on her left side. At the start of all this, we were using a walker, which we happened to have from when Danielle broke her ankle in late 2020. She was getting around on her own but with me nearby to supervise, just in case. Physical therapy seemed to help, and they gave us a "seatbelt" - a strap that we clip around her waist for me to hold on to without having to be up in her grille. On straight-aways, such as t...

 Things are happening. I can't get around by myself. Aaron has to help me get up/down and then I'm using a walker to get to different places. By places, I mean bed, couch, toilet, bed, couch, etc.  Friday the 26th I had another scan and it showed that two places are getting worse and one place had gotten slightly better. We think it is why all of a sudden I went from 100 to 10. We traveled. A very nice friend of mine gave us so me of their timeshare points and we've been to Florida. The timing was perfect because I was still able to get around and be myself. The last night of the trip was really hard though. All of a sudden all of my hair fell out and I had no tools, no scissors, no shavers, no appropriate combs. So a bunch of hair falling out in clumps all over perfectly white bathroom. It felt like I was going to through something vulnerable at a very public place. I had long ago accepted that I was going to lose my hair just not like that. That very next morning I was go...