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Showing posts from January, 2022

"We will either find a way or make one"

I feel like we're getting to the point where the cards went flying and we're trying to catch them mid-air before they hit the ground. On January 6th I had a scan and on the 12th we discussed the results in length. My tumor is growing fast. Brain tumors are rare so it is hard to tell what that means. There isn't enough data to say "tumors that grow x amount over 6 weeks tend to...". What is certain is that they are "very concerned". So much so, we are trying some treatment options that aren't the standard practice but show promise for some of the genetic mutations of my tumor. I appreciate their creativity in crafting new options for me. Whatever it is, it's worth a shot! My cognitive abilities are holding up well. At every appointment, they test me on my vision, memory, thinking, and balance. They try to keep professional and neutral, but they seem surprised at how well I perform despite what they see on my scans. I love that look of relief they ...