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Showing posts from December, 2021

On to 2022!

It's been a year. Diagnosis, poison, radiation, two more poisons. You know, the usual. Pandemic, you know, the usual. We all are burnt out from the sickness, drama, and isolation. Don't get me started about Betty White.  Torin is amazing though, so that light shined all year long. He's the light of my life, obviously. When people ask how I'm doing I say "I'm ok, I'm tired", and I shrug. It's because that's the easiest way to say all of it, you know? It's a new year, I think I'll get a haircut because my hair has stopped falling out in chunks. I'm still losing it, just not as much so fast, one less thing to worry about! Brief synopsis of the last couple of months: I finished radiation at the end of October. I had a not good scan on the week before Thanksgiving. At the beginning of the month I took the same chemo I had taken in September. Then, after two weeks of a restrictive diet and nightly pills, I took my last dose of a third che...

Big Wheels Keep on Turning

 It's been a tough week. On the 16th I had a scan. On the 24th we heard it wasn't great news. What we expected, but not good. There is inflammation in the new tumor area that isn't clear whether it is irritated from radiation or new growth. Now we are adding a second chemo to my current one. These are all things we were warned about so we are less alarmed. What is most concerning is my ability to access my medicine. Every time my doctor's office has tried to get me set up with a new chemo drug there have been massive miscommunication issues and delays. Aaron started a new job at the beginning of November which meant that our new insurance kicked in today. We had paid over 2k in cobra for November so that I would have the same coverage for my scan and the new medicine. We met our out of pocket max in February so we could have gotten this new chemo for free. I found out yesterday morning that we have to start the coverage request for my chemo all over again with the new i...